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Hospice Experience
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The Medicare Hospice benefit is a special way of caring for people who have a terminal illness. Let me make the details less confusing for you. I will tell you how hospice cared for my husband, and taught & supported me while I was his caregiver.
When our family needed hospice, the Medicare Benefit paid for:

* doctor services
   * nursing care
   * medical equipment
   * medical supplies
   * drugs related to the terminal illness (for comfort)
   * home health aides
   * physical and occupational therapy
   * speech therapy
   * dietary counseling
   * social work services
   * grief and loss counseling
   * short-term inpatient care
   * short-term respite care
The nurse was so patient explaining the medications until I understood completely. And Medicare paid for everything that was used for pain and symptom control. We saved hundreds of dollars a month!
The physical therapist worked with me until I was confident with the equipment I needed to use as a caregiver. She also taught me safe transfer techniques to protect my back.

Trained hospice volunteers offered to take over the caregiving duties so I could have a break now and then. Being able to attend church was a huge comfort to me.

When someone you love has a terminal illness, it’s stressful. The social worker offered counseling to help me cope in healthy ways. She also connected me to all the community resources I needed.

When I needed a longer break, my loved one was able to be cared for in a Medicare-approved facility, such as a nursing home, for five days.
When they returned home again, I was a refreshed caregiver.

When my caregiving journey came to an end, I was offered continued support throughout the first year of bereavement. The long and winding road of grief can be lonely, but I made new friends at the hospice support group meetings.

After the sessions ended, we decided to stay in touch with each other as a social circle. It’s good to have people who understand what you’re going through.
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The goal of hospice is to provide care for people who are terminally ill, to manage their pain and other symptoms, and to support the caregiver and family. Curing the illness is not a goal of hospice.

You are entitled to the Medicare Hospice Benefit if you meet all the following conditions:

* You are eligible for Medicare Part A (hospital insurance)
* Your doctor and the hospice medical director certify that you have a terminal illness
* You sign a statement saying you choose hospice care
* You receive care from a Medicare-approved hospice program

The hospice benefit allows you and your family to stay together in the comfort of your home. However, if the illness requires care in an inpatient hospice facility, hospital, or nursing home, the hospice medical team can make those arrangements.

What the Medicare Hospice Benefit will not pay for:

  • Treatment intended to cure the illness (if someone decides to seek curative treatment, they can stop receiving hospice care and go back to the Medicare coverage they had before)
  • Prescription drugs aimed at curing the illness
  • Care from any provider not arranged by the hospice team
  • Room and board in a nursing home or hospice residential facility (unless the team arranges for a short-term respite stay)
  • Emergency room visits (unless it’s arranged by the hospice team)
  • Care in an inpatient facility (unless it’s arranged by the hospice team)
  • Ambulance transportation (unless it’s arranged by the hospice team).

Where can I learn more?

  • Dial 1-800-MEDICARE (1-800-633-4227)
  • TTY users should call 1-877-486-2048
  • or visit www.medicare.gov on the web (select “Search Tools” at the top of the page)